The Official Patient's Sourcebook On Usher Syndrome: Directory For The Internet Age

Book DescriptionThis is a "must have" reference book for patients, parents, caregivers, and libraries with medical collections. This sourcebook is organized into three parts. Part I explores basic techniques to researching usher syndrome (e.g. finding guidelines on diagnosis, treatments, and prognosis), followed by a number of topics, including information on how to get in touch with organizations, associations, or other patient networks dedicated to usher syndrome. It also gives you sources of information that can help you find a doctor in your local area specializing in treating usher syndrome. Collectively, the material presented in Part I is a complete primer on basic research topics for patients with usher syndrome. Part II moves on to advanced research dedicated to usher syndrome. Part II is intended for those willing to invest many hours of hard work and study. It is here that we direct you to the latest scientific and applied research on usher syndrome. When possible, contact...